INTERNET/WWW RESOURCES
American Health Information Management Association
AHIMA is the former the American Medical Records Association. Site contains on-line Journal of AHIMA and IN Confidence (devoted to privacy, security and confidentiality issues). Also "consumer advice" on health information issues.
Center for Democracy and Technology
CDT is a non-profit public-interest advocacy organization, focusing on computer and communications policy issues, including privacy. Site has summaries of current policy issues, collection of background papers, links to other sites. Section on health information privacy issues.
List of health-related links, maintained by the Center for Health Administration Studies (CHAS), University of Chicago. A good starting point to find federal and state government, educational, journal and news source, professional association, and private corporation links.
Dept. of Health and Human Services, Data Council
The Data Council coordinates all health and non-health data collection activities of the DHHS. It is also responsible for implementation of the administrative simplification provisions of the Kassebaum-Kennedy Act (PL104-191). Site has links to other entities engaged in information policy activities.
Electronic Frontier Foundation
Another non-profit advocacy organization, devoted to privacy, free expression and other information issues. Site has comprehensive policy archive and "current events" listings. Links to other sites.
Electronic Privacy Information Center
Another non-profit advocacy organization, but focused on privacy issues. News about privacy and other computer/communications issues, policy and document archive, guide to current privacy-related legislation, and links to other privacy-focused sites. One of the best privacy-advocacy sites.
GAO's site has its reports and testimony (from FY 1995 to date), Comptroller General decisions and opinions, reports on federal agency major rules, and GAO policy and guidance materials.
HCIA: Health Care Information Associates
HCIA is a commercial "information content" provider, marketing bench-marking data and decision-support systems. It claims to maintain "industry's largest private health care database," and to serve the largest US insurance companies, managed care organizations, pharmaceutical manufacturers as well as over 1,500 hospitals.
National Association of Health Data Organizations
National health information organization dedicated to "improving health care through collection, analysis, dissemination and use of health care data." Reports, links to other sites, including the new National Health Information Resource Center project
National Committee on Vital and Health Statistics
NCVHS is the statutorily-mandated public advisory body to the Secretary of Health and Human Services in the area of health data and statistics. The NCVHS web site provides access to transcripts, minutes, testimony and written statements from its public meetings, including the on-going hearings under PL104-191.
Office of Technology Assessment
OTA ceased to exist in 199x, but the National Academy Press maintains an archive of all reports for downloading and printing.
Like CDT, EFF and EPIC, a non-profit advocacy organization, focused on personal privacy issues.
Thomas: Legislative Information on the Internet
Legislation, bill summaries and status information, full bill text, Congressional record text and index for 103rd, 104th and 105th Congress. Search engine. Text of other historical documents. Links to federal internet resources of legislative, executive and judicial branches, and to state/local government sites.
United States Code, Cornell Law School
Full text of the United States Code, for laws in force as of 26 January 1994. Listing of all titles; table of popular names; form for looking up specific sections; and general-purpose search engine.
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